Have you ever wondered what happens during the day for someone else?
Wondered what it would be like to spend a day in their shoes?
Now is your chance!
Welcome to A Day In The Life, a new series that shows you what a day is like for someone else! To take a walk in their shoes, so to speak.
When Echo asked me to share what a day in my life was like, I was pretty excited. And then I remembered that most of my days are spent in sweats trying to pretend that someone actually reads the words I spew into my computer screen. Not so glamorous, that. The other thing about my days is that they are spent walking the path of chronic illness. Some days are better than others, and some are certainly worse. Most are still spent in sweats. Because, obviously.
So here you go, a day in my life as a spoonie, a work from home freelance writer, a chronic illness advocate, and blogger. I’d apologize for the non-glamorous parts, but hey…I did warn you.
7:30 am- After a fitful night, I’m awake for the day, though I’ll lay in bed for another hour before I’ll drag myself to the shower. Usually I check my email from my phone and check what my friends on the East Coast have been doing for the last three hours.
8:15 am- Drag my booty out of bed to walk the dog. (Some days my fiance does this. He’s sweet like that.)
8:30-9:30 am- Shower and dressing, both of which require help from my fiance. RA has really affected my hands and feet, so I rely on him to help with buttons, snaps, etc. Let’s call it “keeping the romance alive.” Just kidding.
9:45 am- Now that I’m dressed, I set out my medications and fix something for breakfast. Some days it’s defrosting a breakfast burrito, some days it’s oatmeal. We keep it real classy up in here.
10:15 am-Noon- Work time. I curl up with my laptop and scan Facebook and email. I answer anything that’s urgent, then work on the day’s blog post if I haven’t scheduled something in advance. After that, I hop on over to the Spoons 4 Spoonies site and check to see if there’s anything that needs my attention. I try to comment on others’ blogs and pages and spread a little love.
12:00 pm- I walk the doggy again.
12:30-2:00 pm- Social media. Which basically means I check Twitter, Facebook, and Instagram while I doze on the couch. Naps are a spoonie’s best friend. Also, I throw something for dinner in the crock pot.
3:00-5:00 pm- Another walk with the dog. Check the mail. Chores. Usually this just means I pick things up and move them around so it kinda looks like I did something. Maybe some dishes get done. If I’m feeling all sorts of energetic, I’ll crank out a load of laundry or do some yoga.
5:00-7:00pm- Put the finishing touches on dinner. Welcome home my fiance. Rattle on about my day and try to make it sound like I did more than drool in front of the computer screen.
7:00 – 10:00 pm- We eat dinner and watch TV together, or a movie. If my hands aren’t too swollen, I’ll work on a craft project. Sometimes we’ll play cards or a board game. It’s usually low-key since he’s tired from a day at work, and my body is starting its daily decline.
10:00 pm- We start to migrate to our bedroom. I grab something small for dessert or a snack so I can take my bedtime medications. One last walk for the doggy.
10:15 pm-???- Bedtime. I take my meds and scroll Twitter or play games on my phone while I wait to fall asleep. This is usually when I have my best ideas, of course, which I won’t remember in the morning. Sometimes I try to remember to make a note of them, but they’re usually indecipherable and I wind up spending half the next morning trying to find out what I was going to write that had to do with “apples, books, funny story.” Or something of the like.
Obviously each day is a little different. Sometimes I have a doctor’s appointment or some errands to run. Sometimes I’m not feeling well and I spend the day in bed. But this is what it’s like to be a writer who also happens to have a chronic illness.
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My name is Tia and this is where I blog about life with chronic illness.
I was diagnosed with Rheumatoid Arthritis in early 2012. I have since been diagnosed with Irritable Bowel Syndrome and Interstitial Cystitis. All autoimmune diseases, all because my immune system is an over-achiever. I’ve also battled with Depression and Anxiety since my teens. All of this combines to make for a pretty nutty life. I have a teenage son, Jojo, who spends most of his time with his father. He’s a genius (my son, not his father) and a sweetheart. He also still tells me he loves me, which I count as a win. I have a few angels who watch over me. My daughter Bella was born still October 2009 and we lost my oldest step-brother to suicide in 2008. My dear friend Misty lost her battle with chronic illness in December 2012. I love and miss them all dearly, and they’ve inspired a lot of what I do today. I’m engaged to a wonderful man who is a full-time office manager, part-time musician, full-time caregiver. We call him Scotty here, to help preserve a bit of his privacy and sanity. He loves me even when I don’t feel very lovable, which makes him the very best kind of guy. He still tells me I’m beautiful and gives me butterflies in my tummy with each kiss. We’re planning to get married in August 2015.